This page about hydrocephalus and oesophagealatresi
was started year 2000
because of that, when our son Tim, born 1992
there was not enough information about these diseases,
and not collected in one place and difficult to find
Neither, we found any contact with
others in similar situation.
The mailinglists are as a network of parents and others
who wants to share their knowledge about HC and OA
Today, a lot of good information exists
on the net but unfortunately so is
that information very thin and not so simple to understand
Therefore, I try to collect information here and on
the mailinglists, in order to disseminate this further.
While every effort has been made to make certain that the information contained in this website is accurate, it must be remembered that the content is managed by a parent, not by a doctor. Information contained here is for general support purposes only and is no substitute for the care of a doctor.
(look in the linkssection for more
comprehensive medical information)